Motivating Monday – Everyday Beth continues to breakdown barriers within the workplace, raising the awareness that inclusion matters. By her actions Beth effectively challenges how people view Chromosome disorders.
Telling Tuesday – Beth has Koolen-de Vries syndrome. We only received her diagnosis a year ago when she turned 21 years old. It is a rare genetic condition caused by chromosome 17[17q21.31 microdeletion including the gene KANSL 1.
Warrior Wednesday – A warrior is someone who is known to be brave, have courage and does not give up easily. This is how our Beth has approached everything in her life and she is ‘Our Hero’.
Thankful Thursday – We have been over the years thankful for many things to do with Beth, her smile her, her unconditional love, her empathy, her kindness, her resilience and of course her constant chatter. Most of all we are truly thankful that Beth is in our lives and that we are always surrounded by her happiness and love. She is the ‘glue that holds our entire family together.’
We are also thankful for the opportunity to meet with many individuals and families that are on the same journey as ourselves and we are thankful for the support that organisations such as Unique have to offer.
#inclusionintheworkplace
#ourbeth
#kdvs
Mum to a Kool Kid 